Day 5 of my song-a-day-for-28-days for FND Hope UK’s “Challenge 28” fundraising campaign.
“Amazing Grace (My Chains are Gone)”
Yesterday, I did a charity stall for FND Hope UK at our local Jubilee Community Picnic. I had a great day but, as all those with FND will understand, today has been a write-off! I have slept most of the day and feel pretty bleurgh! I can’t feel the bottom of my right leg and have limited sensation in the right. My skin is “buzzing”, my hands are clenched and I have a stinking headache that I have, so far, managed to catch before becoming a migraine.
However, I did manage to get my hair brushed, put on a t-shirt and sing today’s song which was requested by my lovely friend, Grace.
I am so glad that Grace chose this song as it is the foundation of my own faith. I am not at my best, but have given it the best that I can today.
On 28th June 2022, FND Hope UK will be celebrating 5 years as a registered charity. This challenge is to help celebrate that, raise awareness of FND and also fundraise to support the wonderful FND community out there.
I am extremely grateful to FND Hope UK for the support I have received, the friendships I have developed with others with FND, and also for giving me purpose by enabling me to get involved in fundraising and as a volunteer for the charity.
To donate to FND Hope UK click on the link below.
Thanks.