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Aphasia in The News : Facts & Fiction [Video]

Aphasia in The News : Facts & Fiction

Carol and Denise, both nonprofit leaders in the aphasia community, share their response to the recent media about aphasia as there has been some misinformation that needs to be corrected.

Fact: The most common cause of aphasia is a stroke.

Fact: No two with aphasia are ever the same. It may impact speaking, reading, writing, or understanding. For some it impacts numbers. For others, it may one area of language impacted.

Fact: Aphasia is a language disability, not an intellectual disability for stroke survivors.

Fact: Aphasia is a symptom of another diagnosis. Most people with aphasia have had a stroke or brain injury.

Fact: Stroke survivors will improve over time. Those with PPA (a form of dementia) will decline slowly over time.

Fact: There is aphasia a type of aphasia called Primary Progressive Aphasia (PPA) that is a form of dementia, not to be confused the aphasia from a stroke.

Fact: Speech Language Pathologists treat aphasia, and it is important that people seek treatment.

Fact: There are an estimate 2.5-4 million people with aphasia living in the US alone.

Fact: There is hope! Stroke survivors with aphasia can and do make progress!

Fact: We’d love to see you get connected. There is a large aphasia community. You are not alone! Join us!

Fact: It is important for all of us to become “Aphasia Aware” as there are people with aphasia in your community!

Tips for Talking to a Person with Aphasia
– Be Patient
– Stay Connected
– Be Respectful –
Ask the Person with Aphasia What Would Be Helpful
– Stay on One Topic at a Time
– Don’t Rush
– Visual Supports May Help
– Accept All Forms of Communication

Denise Lowell
President/Founder
Just ASK (Aphasia Stroke Knowledge)
Website: justaskri.com

Carol Dow-Richards
President/Founder
Aphasia Recovery Connection
www.aphasiarecoveryconnection.org

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Nonprofit's Questions of the Week [Video]

A lively talk about maintaining a culture of philanthropy within nonprofits, covering the importance of communication, transparency, and ethical practice in all fundraising efforts. This engaging Ask & Answer episode highlights the evolving nature of nonprofit fundraising and the ongoing commitment to ethical practices within the sector. Jack Alotto, a seasoned expert in nonprofit fundraising, shares his enthusiasm about the increasing participation in his CFRE (Certified Fundraising Executive) training programs, noting that the numbers remain high with classes reaching around 170 participants. He describes a new initiative tailored for Muslim-affiliated nonprofits, reflecting the inclusive approach of the training sessions. This enjoyable learning episode focuses mainly on the ethical dilemmas fundraisers often face. Jack emphasizes the importance of adhering to ethical standards, especially when dealing with competitive situations between nonprofits, advising against disparaging other organizations, stressing that the goal should be to enhance the entire community's well-being rather than focusing solely on individual success. This approach aligns with the AFP (Association of Fundraising Professionals) code of ethics, which promotes integrity and respect among fundraising professionals. One of Jack's statements from the episode encapsulates his philosophy on this issue: "I am reluctant to engage in a conversation which would disparage another nonprofit... we should continue to talk about the benefits of giving to our organization and the importance of making a gift to advance our mission. It's OK if they also want to give to another organization doing similar work. It just makes the whole community much better." With input from host Julia Patrick, the episode explores the role of ethics in donor relations, with Jack advocating for the inclusion of the AFP code of ethics in donor packets to educate and align expectations with donors.#fundraisingethics #nonprofitfundraising #nonprofitmanagement